ASHG Issues Research Recontact Guidelines in New Position Statement

The American Society of Human Genetics has released a new position statement outlining when researchers have a responsibility to recontact research participants to inform them when there have been new findings that influence the interpretation of their genetic results.

Overall, the new ASHG guidelines strongly suggest researchers recontact participants when the change in interpretation would affect medical management and when it is feasible to do so. The guidelines, presented in a position statement in the American Journal of Human Genetics, were developed by a working group of laboratory and clinical scientists, bioethicists, primary care physicians, genetic counselors, and others.

Source: https://www.genomeweb.com/policy-legislation/ashg-issues-research-recontact-guidelines-new-position-statement